Enlaces
ENLACES
- Centro Alfa1 Sevilla – DAAT
- Centro Catalán de déficit de Alfa1 antitripsina
- Centro Andaluz de Déficit de Alfa-1 Antitripsina
- Centro Galego Alfa-1
- EARCO: European Alpha -1- Research Collaboration
- Asociación Española para el Déficit de Alfa-1-Antitripsina
- Fundación Love x air
- Portal de registro de enfermedades raras.
- SEPAR Pacientes – Pacientes como tú
- COPD/Emphysema Online Support Mailing List – support and information-sharing group for persons with Emphysema and Chronic Obstructive Pulmonary Disease.
- National Emphysema Foundation – tips on exercises, inhalers uses and other such helpful items.
- Alpha One International Registry (AIR)
- Rare Diseases Clinical Research Network
- European Organisation for Rare Diseases
- National Organization for Rare Disorders (NORD)
- The portal for rare diseases and orphan drugs
