Enlaces
ENLACES
- Centro Alfa1 Sevilla – DAAT
- Centro Catalán de déficit de Alfa1 antitripsina
- Centro Andaluz de Déficit de Alfa-1 Antitripsina
- Centro Galego Alfa-1
- EARCO: European Alpha -1- Research Collaboration
- Asociación Española para el Déficit de Alfa-1-Antitripsina
- Fundación Love x air
- Portal de registro de enfermedades raras.
- Alpha One Foundation
- SEPAR Pacientes – Pacientes como tú
- COPD/Emphysema Online Support Mailing List – support and information-sharing group for persons with Emphysema and Chronic Obstructive Pulmonary Disease.
- Emphysema Foundation For Our Right To Survive (EFFORTS) – working to facilitate the education, treatment, and, especially, a cure for emphysema and related lung diseases.
- National Emphysema Foundation – tips on exercises, inhalers uses and other such helpful items.
- Alpha One International Registry (AIR)
- Rare Diseases Clinical Research Network
- European Organisation for Rare Diseases
- British Paediatric Orphan Lung Diseases (BPOLD)
- National Organization for Rare Disorders (NORD)
- The portal for rare diseases and orphan drugs
- News from Orpha.net
- European Respiratory Society statement: diagnosis and treatment of pulmonary disease in α 1-antitrypsin deficiency – PubMed
- American Thoracic Society/European Respiratory Society Statement | Standards for the Diagnosis and Management of Individuals with Alpha-1 Antitrypsin Deficiency | American Journal of Respiratory and Critical Care Medicine
