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- Air2003 International Meeting on Alpha1-Antitrypsin Deficiency
- Alpha One Foundation
- Documentos en español en Alpha One Foundation
- Asociación Española para el Déficit de Alfa-1-Antitripsina y Fundación Alfa-1 de Puerto Rico
- Alpha-1 Antitrypsin Association
- COPD/Emphysema Online Support Mailing List - support and information-sharing group for persons with Emphysema and Chronic Obstructive Pulmonary Disease.
- Emphysema Foundation For Our Right To Survive (EFFORTS) - working to facilitate the education, treatment, and, especially, a cure for emphysema and related lung diseases.
- National Emphysema Foundation - tips on exercises, inhalers uses and other such helpful items.
- EPOCNET (Información on line sobre EPOC ofrecida por Laboratorios Boëhringer-Ingelheim)
- Alpha One International Registry (AIR)
- Rare Diseases Clinical Research Network
- European Organisation for Rare Diseases
- British Paediatric Orphan Lung Diseases (BPOLD)
- National Organization for Rare Disorders (NORD)
- Déficit de Alfa-1-Antitripsina org.
- The portal for rare diseases and orphan drugs